St Albans girl with rare condition is awarded Maltings Community Heroes Award for July
- Credit: Archant
A brave girl who spoke out to her school about her rare disease has been rewarded for her charitable efforts.
Wheatfields Junior School pupil, Gabriella Farrugia, 11, has scooped July’s Maltings Community Heroes Award by raising £1,647 for Great Ormond Street Hospital (GOSH).
Gabriella talked about her condition, Juvenile Dermatomyositis (JDM), a rare chronic auto-immune disease that causes the immune system to attack the body, resulting in severe muscle weakness, to 300 of her classmates in an assembly.
She then organised a sponsored fun run where pupils attempted to run around the school field as many times as possible in 10 minutes.
Gabriella spent six months at GOSH after being diagnosed with JDM last year and still goes back regularly for treatment. She wanted to raise money for the hospital to say thank you for the help she had been given.
You may also want to watch:
Gabriella chose an active fundraising event because her condition means her movement is restricted.
She said: “I wanted to do the fun run to raise as much money as possible for Great Ormond Street because it’s such an amazing hospital.
- 1 Where in Hertfordshire are the most incidents of weapon possession?
- 2 Girls 'followed' by men in red Range Rover at 2am in city centre
- 3 St Albans named among UK's most family-friendly cities
- 4 Fashionistas flock to Cathedral catwalk extravaganza
- 5 Light at the end of the gulley for long-running flooding
- 6 As sewage debate continues, how have our MPs voted?
- 7 St Albans named among UK's coldest cities
- 8 Needle spiking incident alleged at St Albans nightclub
- 9 Property Spotlight: A characterful Victorian home in Wheathampstead
- 10 Fly-tipped rubbish near Heartwood Forest set to be cleared
“I did the talk about JDM to raise awareness of it because it’s so rare and nobody knows about it; putting up with a condition that nobody’s heard about and nobody understands is really irritating.”
She added: “After I did the fun run everyone was saying it was amazing and everyone really enjoyed it; I didn’t think it would go down well because not very many people like running in my school.
“I would have been happy with whatever money I raised because all of it would have been more than GOSH had before, but getting that amount of money was incredible.”
The Maltings has been running the community awards scheme in conjunction with the Herts Advertiser and each month the winner is presented with a £100 cheque.