Harpenden disabled man’s wheelchair campaign after NHS refusal
- Credit: Archant
A housebound disabled man from Harpenden has spoken out about the struggles he faces and his need for an electric wheelchair, which the NHS will not supply.
Mike Joiner, 51, has a rare condition called Addison’s disease which affects only 8,400 people in the UK, according to the NHS.
After steroid treatment for a separate condition in his teens, Mike’s body stopped producing enough of the hormone cortisol by itself – it is essential for many functions like blood pressure and sugar levels, formation of memories, and controlling salt and water balance.
It means Mike is fatigued, sometimes confused, and has little body weight and muscle mass, among other symptoms.
In 2014, before diagnosis, Mike went on a health kick and was initially pleased to see immediate results when he starting losing weight.
You may also want to watch:
By November 2015, after shedding about 35kg in 18 months, doctors diagnosed him with the adrenal gland disease and his life was forever changed.
Last year, Mike’s blood pressure was so low he collapsed, his organs started to fail, and had to spend five months in hospital having surgery so he could eat and drink.
- 1 New £250K play park to be built in Harpenden
- 2 Festival applications granted for St Albans' Springfield Farm
- 3 May 17: What can open when COVID-19 lockdown rules ease
- 4 Street food market in St Albans city centre to celebrate Eid
- 5 May 17th: Harpenden's White Horse boasts record bookings since lockdown lifted
- 6 London Colney paddling pool to close - but splash pad replacement approved
- 7 County council leader unseated in shock result
- 8 Drop-in COVID vaccine sessions available this week
- 9 Elections: Liberal Democrats take control of St Albans district council
- 10 Prove you’ve had vaccine, say a third of St Albans office workers
During this time, Mike’s weight plummeted a further 25kg, and has dropped another 10kg since returning home.
He now has so little energy or muscle mass that both his occupational therapist and physiotherapist do not recommend pushing himself in a wheelchair, as it would exert him too much.
This has left Mike housebound, which he described as frustrating and depressing.
He said: “It was really a shock to the system after my diagnosis, I now had a condition that I had never heard of and then finding out it was so rare and the implications of the condition are so wide - I have to carry around an emergency injection kit of cortisol all the time.”
If Mike breaks a bone, he could die in two hours without his cortisol shot.
The NHS has told Mike that he does not meet the criteria to get a wheelchair because he only needs it when going outside - his flat isn’t big enough to manoeuvre a wheelchair around indoors.
In order to buy an electric wheelchair and give Mike his independence back, he needs to raise £2000.
He added: “Having the ability to get out when I want will have such a massive and positive impact on my life, not having to rely on others would make such a difference.”
To donate to his cause, click here.