Life’s short, but Rennie Grove nurses are there for those children in need of specialist care

PUBLISHED: 11:00 24 May 2018

Riley is being cared for by Rennie Grove’s children’s nurses.

Riley is being cared for by Rennie Grove’s children’s nurses.

Archant

Rennie Grove Hospice Care has joined with other hospice care providers in the UK to raise the profile of children’s palliative care during Children’s Hospice Week. This year the theme is “Life’s short”.

Rennie Grove provides a specialist 24/7 children’s hospice at home service for babies, children and young people up to the age of 19 living with a life-limiting condition in parts of Bucks and Herts.

Its team of specialist children’s nurses provide flexible and responsive care tailored to each family’s needs to help ensure that the children are able to fulfil their potential and enjoy the best quality of life possible. And when the time comes, it ensures that every child and family has the choice to receive specialist end of life care at home.

It is currently caring for 41 babies, children and young people.

Visit www.renniegrove.org/ourchildren to read about children like Riley and Stanley. They smile and giggle and win hearts just like any other five and four year old but sadly neither Riley nor Stanley is able to sit, walk, talk or even feed properly.

Both boys have been diagnosed with a very rare genetic condition involving a duplication of an X chromosome which has left them with very poor muscle tone and requiring constant care. Riley and Stanley are being cared for by Rennie Grove’s children’s nurses who also provide support to the boys’ parents, Shailza and Daniel.

Shailza said: “Knowing that there is help at hand 24 hours a day is immensely reassuring. I have also called them [Rennie Grove] at night for advice when the boys become ill and I was unsure about whether or not to call an ambulance. They will always offer advice and come out if needed and if the boys are in hospital they will come and visit.”

Rennie Grove works closely with other care providers to create a cohesive team around the child and family, but most importantly, it empowers families to care for their child and live a life as close to normality as possible.

It also offers a range of counselling and support services to family members including siblings of child patients and the children of adult patients.

Join the conversation on social media using #LifesShort and #ChildrensHospiceWeek and follow Rennie Grove on Twitter @renniegrove or like them on Facebook @renniegrovehospicecare. Visit www.renniegrove.org/children to find out more. Children’s Hospice Week runs until May 27.

More news stories

17:00

Two St Albans mums are hosting a one day pop-up vintage clothes shop to help fund a charity fashion show next year.

St Albans district’s hospitals could be left without vital medical supplies after Brexit, new data appears to show.

09:00

A 17-year-old girl from St Albans has been selected as one of eight winners of Young Sportsperson of the Year.

Yesterday, 18:00

Traffic is queueing on the M1 following a crash between a car and motorcyclist in the St Albans area.

CountryPhile

Recently we, as a family (minus two of the kids), visited The Lodge RSPB reserve in Sandy, Bedfordshire. I had never been before, which is perhaps amiss of me as a birdwatcher as it is the headquarters of the Royal Society for the Protection of Birds or RSPB and only 45 minutes drive from home.

Digital Edition

Image
Read the The Herts Advertiser e-edition E-edition
Zoo Watch CountryPhile

Newsletter Sign Up

Herts Advertiser weekly newsletter
Sign up to receive our regular email newsletter

Our Privacy Policy

Most read stories

Show Job Lists

Herts Most Wanted Herts Business Awards